The latest stop for the Pirovolakis family in the search for a cure for their who has a rare genetic disorder is San Diego. Terry Pirovolakis is at conference for families of patients with rare genetic disorders, to show them how to manoeuvre and advocate in the medical research community.
via CBC | Top Stories NewsSunday, 22 September 2019
Next frontier in medical fundraising? Toronto man turns to boot camp to help raise $3M for son's rare disorder
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